Motor Neurone Disease
Nottinghamshire Branch

Welcome to our MND Nottinghamshire Branch website. On this site you can find up to date information about branch meetings and events. You can also find lots of resources and links to MND material and help.

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In 2016 we launched a 6 minute video for MNDA Awareness Month to help highlight the importance of social contact and mutual support for individuals who are affected by MND. The MNDA Nottinghamshire B ranch runs a social event every 'Second Thursday' at The Mapperley Plains Social Club. Everyone is very welcome.

Read more here.

For further information and support contact our
MND Connect helpline

0808 802 6262 or email

About MND

Motor Neurone Disease (MND) is the name given to a group of related diseases affecting the motor neurones in the brain and spinal cord. 

The effects of MND vary from one person to another as does the rate of progression. Being well informed and planning ahead can help to make the best use of the present time, and enable people with MND to achieve the best possible quality of life.

 Motor neurones are the nerve cells along which the brain sends instructions, in the form of electrical impulses, to the muscles. Degeneration of the motor neurones leads to weakness and wasting of muscles.


Who gets MND?

MND is not contagious. It can affect any adult at any age but most people who have MND are over the age of 40 and the highest incidence is in the 50-70 age range. Men are affected slightly more often than women. Precise figures for incidence and prevalence of MND are still uncertain. The incidence (the number of people who will develop MND in any one year) is approximately 2 per 100,000; the prevalence (the number of people who actually have MND at any one time) is thought to be approx 7 per 100,000. The estimated number of people with MND in the UK is up to 5,000.

How is MND Diagnosed?

There is no specific test for MND and it may be difficult to diagnose with certainty in the early stages of the disease because the pattern of symptoms varies between individuals and may be similar to those seen in other conditions. The neurologist (who usually makes the diagnosis) will probably carry out a number of specialised tests in order to eliminate other conditions as well as giving the person with MND a thorough physical examination in order to confirm the diagnosis.

What causes MND?

The cause of MND is not yet known, but a great deal of research work is being carried out, and encouraging advances are being made in understanding both the disease process and the way motor neurones function.

What can be done to help?

Given that MND is a progressive condition, it is important to plan ahead and find out in advance about the services or equipment which may be needed. A range of professionals are employed by Health and Social Services Departments who can help people with MND and their families to live with the condition.

A range of services are available via the Association to ensure that people with MND are enabled to make informed choices about living with the disease. For more information, click here to visit the national Motor Neurone Disease Association website.

Our Branch

The Nottinghamshire Branch of the association is a group of like minded individuals who volunteer to provide support and information for individuals and families who have been affected by Motor Neurone Disease.

Many of the volunteers have personal experience of the disease and whether you are a person living with the disease, a carer or family member, we can help you get the most out of life.

MND is an incurable condition that paralyses the muscles, leaving people unable to do the everyday things the rest of us take for granted. Walking, talking and swallowing may become virtually impossible, yet the mind and senses are rarely affected.

Click here here for more information.

Our Branch liaises with health and social care professionals such as Speech Therapists, Occupational Therapists and the Medical Profession. Our Branch holds regular Open Meetings at the Mapperley Plains Social Club, Nottingham for people living with MND, their family and carers. These provide an opportunity to meet with other people living with the disease, and to share experiences and ideas.

We provide information, advice and support in the following ways.

  • Monthly 'Second Thursday' Meetings - These provide an opportunity for individuals and families to meet and share their experience and knowledge with each other
  • An Association Visitor - Who will stay in regular contact with you, supporting and signposting you to other services
  • Funding specialist equipment and services to meet your needs
  • Quarterly local newsletters
  • A website to keep you up to date with the latest news and events
  • Social media channels to keep you updated on the most recent news and activites
  • We have excellent links with the MND Care Centre based an the Queens Medical Centre
  • Fundraising - We organise various fund raising events which can be fun, but also help to raise awareness of this disease

For information about the work of the Association, and up to date information regarding the disease, care and research, please visit the national Motor Neurone Disease Association website. You are also welcome to visit the web sites of our neighbouring branches Leicestershire and Rutland, Derbyshire and Lincolnshire.

Support Groups

We run two main support groups in Nottinghamshire, both of which are open to people living with MND, their carers, family and friends.

'Second Thursday' support group

What’s ‘Second Thursday’ all about?

It’s a great opportunity for people whose lives have been affected by MND to get-together in a relaxed and welcoming atmosphere in order to share with one another and learn more about the issues surrounding MND.

Who will be there?

People living with MND, their carers, family and friends. Also Healthcare professionals from the MND Association or the MND Care Centre at the QMC are in attendance.

Why should I go? - Take a look at our video above

Because it’s a unique opportunity to meet other people whose lives are affected by MND. The feedback we get from those who attend is overwhelmingly positive.

Where do we meet?

At the Mapperley Plains Social club on Mapperley Plains Road (NG3 5RH) at 2.15pm - 3.45pm View map

When do we meet?

Every 'Second Thursday' . Dates can vary from time to time so please take a look at our online calender for more details.

Do you have any questions?

If you have problems with transportation, let us know as we may be able to help. If you require any further information regarding our ‘Second Thursday’ meetings, please ring Roger Spells on 07918 030260 or email We hope this information will inspire you to join us and you can be assured of a warm welcome.

'North Notts' support group

What’s the ‘North Notts’ support group all about?

We are a very small group of people living with or affected by MND.
Some people find it difficult to travel to Mapperley so we hold a support meeting every month in Retford. These are attended mainly by people from Bassetlaw.

Where and when do we meet?

The meetings are held on the 1st Wednesday of each month in Bassetlaw Hospice, Cedar House, North Rd, Retford, DN22 7XF from 11 - 12:30pm

View map

What can I expect?

Most months someone from the Community Neuro Team attends, such as an Occupational Therapist, Speech and Language Therapist or Physiotherapist.
The meetings always start with refreshments and are organised by volunteers who also attend Second Thursday meetings.
We are very friendly and support each other.

Do you have any questions?

Any questions contact Jenny Smith on 01636 683433 or email

Latest News

Our latest bulletin can be downloaded here.

Meet Our Committee

If you’d like to become involved with the Notts Branch Committee and join in with all the other Committee members doing their best to support people living in Nottinghamshire with MND plus their carer’s and family members, then please contact Mike Cole for further details. We meet every couple of months and get involved in all sorts of activities offering support and the only skill required is enthusiasm.

Get In Touch

If you want to know more, please get in touch.

Carol Hughes (Branch contact) - or 07977 355552 / 01623 409943

Carol Hughes (Secretary) -

Mike Cole (Chair) -

We’d love to hear from you!